NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › EDS/MS/Chiari › Welcome Expired refugees › Reply To: Welcome Expired refugees
I have no idea what their problem is, but they really don’t want to look in the mirror. It’s a shame too that they come down hard on those who do try to promote awareness and direct people to their website. If it wasn’t for the other bendies and amazing drs (though I wish Dr. D wasnt shunned) I would boycott conference. Instead I think I will go and do my own idea for connecting people since EDNF seems to disorganized to get anything done. I can tell you though it will be hard to listen to them beg for volunteers again after they did jack squat with people who offered to help last year.
I also need to get off my arse and get my thirst designs out there. I have some REALLY good ones. Proceeds to go to MY service dog’s training and awareness projects that I have ideas for.
I have also considered coming back to Expire under a pseudonym. Not sure it’s worth the hassle though.