NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › Vision › palpilledema anyone? Also does anyones eye pressures test high first when they first get checked? then go down the longer they sit in the Dr Office? › Reply To: palpilledema anyone? Also does anyones eye pressures test high first when they first get checked? then go down the longer they sit in the Dr Office?
I have had papilledema since 2002. But since my lumbar punctures have shown normal pressure, they don’t believe I have high intra-cranial pressure. Thanks to the Driscoll Theory, I understand that the pressure may be mildly elevated, but not show up on lumbar puncture. So I very likely would benefit from Diamox…once I find a doctor to prescribe it. But currently, I can’t even get an rx for a pain medicine.
Thats one thing i was very confused about. I always show very elevated pressures in my spinal taps. Have even tapped out before. So i guess i actually do have pseudotumor ceribri. I have not let them give me a spinal tap since last june though. Thats when i started suspected the chiari. They resubbmited the mri to be reread looking for chiari. And a 3 to4 mm was reported. My neuro optamolgist said thats from all the spinal taps they have give me.