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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Reply To: The Chronic Fatigue Element

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › EDS/MS/Chiari › The Chronic Fatigue Element › Reply To: The Chronic Fatigue Element

July 24, 2012 at 4:46 pm #2665
Barbara
Participant

I assume the sweating stuff is autonomic dysfunction but maybe, just maybe, sometimes our bodies might be trying to get rid of ‘toxins’, which we also do by sweating. Now the problem with this is, many of us do not have the energy to shower immediately after sweating (and it happens too often) but if we do not wash after sweating, we simply re-absorb whatever it was back throught the skin, therefore never actually get shut of it.

I’m curious, has anybody had any ‘Toxin’ tests, at all ?
Regards
Barbara
(UK)

I had a toxins test — it came out fine. I also alternate between hypothermia and sweating profusely. The sweating for me is usually a “flush” from histamine release. Is that what happens to you? I can feel it coming and start pulling off covers and clothes, then it stops and I’m hypothermic again. This STOPPED once I had my mast cells and anti-inflammatories balanced out. It only returned when I injured my shoulder, and it returned with a VENGEANCE. It is settling down once again. When this happens, though, I am especially non-functional, and PUFFY from histamine release. I am also more “fibrotic”. This is something we’ll talk about on a video soon — our tendency toward fibrosis — liver, lung, breast, lymph nodes, shoulder, etc. I think fibrosis is occurring inside of our vessels, too. That is not good, but I think we can stop this down hill slide. Working on that! 🙂 Diana

Hi Diana
Yes, that’s how it happens to me, it comes on sudden, I have to rip off my Philadelphia collar and put on the nice open Headmaster collar while I cool off. I too alternate between hypothermia and sweating profusely. Also I can wake up in the night both hypothermic and yet wet through with sweat!

My mast cells, just taking Cetirizine, are obviously not ‘balanced out’ yet (as you say) as I still wake with puffy hands. I’m starting the Zantac (Ranitidine) next. Do they work ‘together’ in unison, or do they work on seperate things altogether? Roughly how long should I be on these before taking the Cromolyn Sodium, or should I be trying to get on this ASAP?

Keep up the Good Work!!
Kind Regards
Barbara
(UK)

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