Hi Jill,
Thanks for your concern, hey no need to worry now, because the good news is that I was called in for a ‘short notice’ appointment with a neuro-opthalmologist, who put drops in my eyes, then looked into them with a machine, following which he said I could have Diamox for a month! Yeay! . . . . so, I’m just waiting for the chemist to deliver it.
So, if there’s anyone else in the UK having difficulty getting Diamox and you’re having symptoms of raised intracranial pressure that’s affecting your vision, ask to be referred to a Neuro-opthalmologist. The symptoms I was having were – eye pain (the sort that feels like pressure from behind the eye) especially first thing in a morning; intermittent double vision (Diploplia) where if I looked at someones face I could see one set of features on top of the other (even with one eye closed!); Intolerant of bright light (Photophobia) and Headaches (or brain ‘soreness’ especially over the top of the head). I think the constant high pitched tinnitus and the deeper pulsing sound I wake up with is related too.
Regards
Barbara
(UK)
Head & Neck Injury (June 2002); Mild Concussion; Post Concussion Syndrome; Postural Orthostatic Tachycardia Syndrome (POTS); Peripheral Vestibular Dysfunction; Mild Radiculopathy & Small Fibre Neuropathy (right leg & foot resp.); Partially Empty Sella (Oct 2002) Fully Blown Empty Sella (Oct 2004); Whiplash Associated Disorder (WAD); 3mm Cerebellar Ectopia (Chiari 0); Cranio-cervical Instability (CCI) with Posterior Gliding (PG) & Cranial Settling (CS); Brain Compression; Retroflexed Odontoid; Stretched/Elongated Brainstem; Ehlers Danlos (EDS) type 111; Osteoarthritis; Arrhythmias (Bigeminy and Trigeminy). . . and now Mitochondrial Dysfunction, Mineral (Mg,Mn,Cu,Zn,Selenium)& Vitamin (C,D,B3,B12) Deficiencies!