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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Reply To: Vitamin D 25 hydroxy deficiency and EDS

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › Skin › Vitamin D 25 hydroxy deficiency and EDS › Reply To: Vitamin D 25 hydroxy deficiency and EDS

April 6, 2012 at 9:34 pm #1958
Bee in oz
Participant

Seems there are some common associated conditions?? located near the collagen gene locus that’s affected??? or just correlation doesn’t equal causation??? I suspect there is a genetic problem with CYP6D2 (that’s for memory… ha ha… not so good at pres)the metabolism of some substances affected and adverse/strange drug reactions. It’s so very complex and we dont have any concrete research looking at the whole person with EDS. We are victims of sub-specialists who can only focus on one system… may be a gross generalization, but how I’m feeling (I have a dream… every capital has a center for connective tissue disorders, where the medics can spell Ehlers Danlos and know more about it than me!!! Lucky I like puzzles!!)
All the best with finding a good doctor. I’ve just found the most wonderful GP/PCP who is just amazing. Gives me hope. Hope you are all OK. Bee (::)

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