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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Reply To: CCSVI as the cause of POTS

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › POTS › CCSVI as the cause of POTS › Reply To: CCSVI as the cause of POTS

July 23, 2012 at 6:26 pm #2660
McKenzie
Participant

Oh my, Thank you for the good info. I’m hoping for that we find a way to treat CCSVI without angioplasty. We sure don’t need more problems on top of what we already deal with on a daily basis. Because some people do come out of it and have no symptoms at all, it seems dangerous to do the angioplasty! I’m waiting to see that symptom list you’ve made. 🙂 I did try Z/Z for only a couple of days. It totally wiped me out! I was not able function at all. It literally put me in bed. Perhaps I could try a child size dose to see if that would work. Even though my headaches are much better, by the end of a work day, I literally can barely hold my head up and run right to bed and fall asleep immediately. After a 20-30 minute nap, I can breathe easier and go for a while again. (I do this at lunch time too.) I have found that I can’t lift my arms up above my head or even out in front of me like when folding clothes. It really puts a kink in my neck and shoulders and gives me a headache again. Luckily I have a wonderful husband who helps out a lot at home! He’s even so kind as to work out the kinks for me. Thanks for listening and thanks for the hugs! Hugs and love to you as well. 🙂

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