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PrettyIll

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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Reply To: EDS/Mast Cell/Dysautonomia Connection?

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › EDS/MS/Chiari › EDS/Mast Cell/Dysautonomia Connection? › Reply To: EDS/Mast Cell/Dysautonomia Connection?

September 7, 2011 at 1:46 pm #1452
ourfullhouse
Participant

Dr. Diana,
Thank you for your recent video on the mast cell side of the Driscoll theory and the answers to email questions about Diamox, etc.

It was very interesting to me to hear that mast cells can cause cysts in the liver! Finally, an answer! I have several cysts and no one knows why, but I also have at times horrible pain in my liver area! All my liver panals are fine, and if anything, they go VERY LOW when it is at its worst. Argh. Talk about not helpful at all!

Also, when researching Diamox more (still trying to get these headaches figured out… only on 62 mg at night – can “rebound” headaches happen? I totally get the whole dynamic componant – wondering if I should take another 62 mg dose if I wake up at night with the headache?) I saw a lot of links to psuedotumor. This is very interesting to me because when I was 14/15 and had been plagued with headaches for about a year, my doctor sent me for a CT scan (nice bonus… I reacted to the contrast, scared me bad!) and the report said I had a psuedotumor. Dr. told us it was nothing to worry about and never did anything about it.

Is a psuedotumor related to brain pressure?

Thanks so much!

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