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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

Reply To: palpilledema anyone? Also does anyones eye pressures test high first when they first get checked? then go down the longer they sit in the Dr Office?

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › Vision › palpilledema anyone? Also does anyones eye pressures test high first when they first get checked? then go down the longer they sit in the Dr Office? › Reply To: palpilledema anyone? Also does anyones eye pressures test high first when they first get checked? then go down the longer they sit in the Dr Office?

May 17, 2012 at 11:07 pm #2178
Barbara
Participant

Hi
Just checked my consultants report from when I was referred to the eye specialist in 2005, at which time I was having loads of problems. I thought it said papillaedema but it doesn’t, it actually says mild papillae in the conjunctiva with dryness, whatever that means ?

He does comment that extra-ocular movements were full, though they were slightly painful on extreme peripheries (and remain so to this day – now accompanied with a nauseating feeling!).

In addition, other than strange visual problems, I have constant high pitched tinnitus, sometimes accompanied with what sounds like a lorry going up hill (on a morning). I can hear blood pulsing in my head. Sometimes the image I’m seeing flickers when I blink, I can also ‘see’ my heart rhythm pulsing in my vision from time to time. I’m sure these are the symptoms of raised intercranial (intracranial?) pressure. Anyone else get these symptoms ?

What type of specialist is it best to see with these type of problems ?
Regards
Barbara
(UK)