Hey Diana,
It’s been proven that I have a certain level of Mitochondrial Dysfunction and I know Dr Paul Cheney’s work talks about Mitochondrial Dysfunction contributing to our heart problems.
Barbara
(UK)
Barb! Can you tell us what was proven about your mitochondria (and how)? I’m not familiar with Dr. Cheney’s work, either. You know me! I must know it all! 😉 Help? As far as the villi go, they may be blocked by RBC’s upon birth (looking at our head circumferences at birth), but that is pure conjecture on my part… Thanks, Barb!
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Head & Neck Injury (June 2002); Mild Concussion; Post Concussion Syndrome; Postural Orthostatic Tachycardia Syndrome (POTS); Peripheral Vestibular Dysfunction; Mild Radiculopathy & Small Fibre Neuropathy (right leg & foot resp.); Partially Empty Sella Oct 2002 (worse by Oct 2004); Whiplash Associated Disorder (WAD); 3mm Cerebellar Ectopia (Chiari 0); Cranio-cervical Instability (CCI) with Posterior Gliding (PG) & Cranial Settling (CS); Brain Compression; Retroflexed Odontoid; Stretched/Elongated Brainstem; Ehlers Danlos (EDS) type 111; Osteoarthritis; Arrhythmias (Bigeminy and Trigeminy). . . and now Mitochondrial Dysfunction, Mineral (Mg,Mn,Cu,Zn,Selenium), CoEnzymeQ10 & Vitamin (C,D,B3,B12) Deficiencies!
Sure, as you know I’ve been fighting to ‘get better’ since the day this happened to me and being the analyst, like you, I needed to know everything about everything, so I could make a more informed decision. I’ve looked at more ‘other conditions’ than I care to confess to and, again like you, I could see similar patterns appearing, time and time again. Too many conditions were so very, very similar and many carried the ‘symptom set’ relating to fatigue.
On my journey down this path (which eventually led me to YOU, by the way!!)I became acquainted with the works of a Professor Malcolm Hooper (who had played a major part in determining the cause of Gulf War Syndrome and a warrior for the cause). I also discovered a Dr Sarah Myhill, a GP in Wales (UK) who has a very informative website, another warrior for the cause. Dr Myhill has successfully treated thousands with CFS/ME. Her website is:
http://www.drmyhill.co.uk
She, along with 2 colleagues devised a test to prove that CFS/ME was not a psychological disorder, found at:
http://www.ijcem.com/files/IJCEM812001.pdf
Brief: 16th January 2009 on the publication of “Chronic Fatigue Syndrome and Mitochondrial Dysfunction”. Our paper (authors: Prof Norman Booth of Oxford University, Dr John McLaren Howard of Acumen, Dr Sarah Myhill). It is conducted through blood tests, so I paid my fee and received a (19 page!) report, the results of the tests, along with normal values and brief interpretation are on my opening post on this ‘The Chronic Fatigue Element’ topic.
Both of these people have been professionally browbeaten and they have tried (unsuccessfully, thank heaven) to strike Dr Myhill off (the last tribunal ended up with her accuser being suspended – poetic justice!!) I believe some of the American pioneers and researchers in this field have suffered similar fates too – it almost seems like a conspiracy! very odd indeed!! Why do the ‘powers that be’ not want us to get better, it doesn’t make economic sense?
Anyway, if you have a couple of hours to spare (EVER?!) I recommend you watch the video by DR Paul Cheney, regarding how the disorder affects our hearts, causing LVDD – wow, he’s good!
http://www.cfids-cab.org/MESA/CFS_Dist.htm
Enjoy,
Barbara
(UK)