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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Reply To: Weird changes in my nails

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › Skin › Weird changes in my nails › Reply To: Weird changes in my nails

July 21, 2011 at 7:16 pm #1325
Dr. Diana
Keymaster

Hi Mother 1991, Wow, have you been through the testing! Your bloodwork should certainly reveal even more pieces of your puzzle. From what I can tell from my reading and talking to other mast cell patients, it is VERY difficult to diagnose mast cell, so with symptoms (like your rashes and GI issues), they just treat it. You will know in a couple of days if you are headed down the right track, and in a couple of weeks, you should notice a BIG difference. I like this website, and be sure to print out the “Patient Experience” letter: http://mastocytosis.ca/ . In that letter, they explain how it’s all related. You may want to ask your doctors if a trial of Diamox could be considered. As you probably know from this site, I’ve learned that most of us have a bit too much pressure on our brains from birth, and that may start some of the cascade of symptoms that we endure. Please keep us posted, OK? 🙂

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