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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Reply To: Weird changes in my nails

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › Skin › Weird changes in my nails › Reply To: Weird changes in my nails

July 22, 2011 at 7:12 pm #1328
mother1991
Participant

the only problem is I am severely allergic to sulfa drugs and with this med (diamox) from what i read would not be really able to take. I am not sure if i am mistaken on this. Also is not diamox also like HCTZ, if so need to be very careful because of lymphedema as it can exasperate it. But hey I am willing to try different things if it helps even if there is no explanation as to why it may help.

Here is full list allergies, meds, supplements, and conditions. This i think may also be helpful. The supplements may be stopped because of the IV infusions I take will know next week.

Allergies

Latex
Penicillin
Novocain
Sulfa
Zithromax
Zovirax
Erythromycin
Tetanus
CT Contrast
Compazine
Reglan

Special Note:
**CT Contrast even with high doses of premedication still had reaction of instantaneous hives and itching around face even for a couple of days afterwards negating taking Benedryl
50 mg TID for 4 days. Advised no more Contrast do MRI instead.

**Compazine and Reglan cause Tardive Dyskinesia.

Medications

Ambien CR 12.5 mg QHS
Marinol 2.5mg BID
Midrin PRN
Calcitriol 1mcg TID
Creon 24000 IU 2 tabs with each major meal or 6 per day with food.
Multi Vit IV Infusions Q month
Oxygen 2 Liters at Night
Farrow Wraps for Lymphedema
B12 injection Q Month
Gas x PRN
Tylenol PRN
Tens Unit-Knee pain

**Promethazine and Zofran ineffective in control nausea and have failed.
**Kytril, Anzemet, and Benedryl tried and failed to control nausea.
nausea

Supplements

Multi Vitamin and Mineral/no Copper QD
Calcium Citrate 250mg four time’s day
Vitamin D3 50,000 IU TID
Niacin 500 mg TID
Vitamin A 30,000 IU QD
Vitamin E 400 IU QD
Vitamin K 1000 mg QD
Vitamin B Complex QD
Zinc 50mg QD
Magnesium Citrate 140 mg QD
Vitamin C Ascorbic Acid 2000mg Four Times Daily
Probiotics QD
Copper D/C 10/1/10 due to high Copper Serum Level

Current Conditions

Ehlers Danlos Syndrome Hypermobility (Type 3)
Gastric Bypass RouxNY 2004
Malabsorbtive Syndrome
Secondary Hyperparathyroidism
Chronic Nausea/Vomiting
Osteopenia
Chronic Insomnia
REM Disorder
Mixed Headache (Migraine/Tension)
Focal Intestinal Metaplasia
Intusseption at Jujunjujunostomy
Anycytosis
High Iron Unbound
Low Iron Saturation Percentage
High CRP
High West Sed Rate
High PTH
High Vitamin D 1,25 Dihydroxy
Low Serum Ion Calcium
Niacin B3 deficiency
Vitamin B12 deficiency
Vitamin D deficiency
Vitamin C deficiency
Vitamin K deficiency
Low Serum Beta Carotene
High Serum Copper
Low Hemoglobin
Low MCV
Low MCHC
High RDW
High Neutrophil Rel
Low Lymphocyte Rel
Chromosome 2p16.3 microdeletion
(Not know more on this but told very rare.)
High B1
Lymphedema Bilat Legs
Lipodema Bilat Legs
Astigmatism
Myopia
Presbyopia
Amblyopia
Strabismus
Photophobia
Pupils Large 4 cm Bilat
Some dryness in eyes

Right Arm swelling rash 2 1/2 years
Marked decrease in strength right hand

**Erosion patchy area afferent jejunal loop. Two clips placed to control bleeding.
Bx report-Flatten Erthymatous Mucosa, Duodenum Biopsy
Small bowel mucosa with focal minimal gastric surface Metaplasia, consistent with healed injury. No features of acute duodenitis.

**Left Knee-Complicated and Chronic tears in ACL and Meniscus tears both lateral and vertical. Mild water on the Knee. Mild arthritis.

Surgeries

Widen Nostrils Age 3 months, 6 months, and 2 yrs
Eye-cut and stretch muscle-Age 3, 6, 9
Adenoidectomy-Age 3 and 5
Tonsillectomy- Age 5 and 26
Tubes in ears 8 times from age 8 months- 7 years
C-Section 1989 and 1991
Lap Choley 1996
Umbilical Hernia Repair 2001
Gastric Bypass Roux N Y 2004
Ventral hernia Repair 2006
Feed Tube Placement 2005
Port Placement 2011- Bard power port right side.

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