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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Reply To: Vitamin D 25 hydroxy deficiency and EDS

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › Skin › Vitamin D 25 hydroxy deficiency and EDS › Reply To: Vitamin D 25 hydroxy deficiency and EDS

July 22, 2011 at 9:21 pm #1329
momcat7
Participant

I suggested IV therapy to the endo, but he was not familiar with it and wanted me to check with my specialist. My insurance will cover IV therapy 100% and prescriptions at much less and I’m fine with needles. I do much better with any med I can get IV rather than the stomach upset or headache that goes along with ingesting meds and /or supplements. I have severe edginess and cardiac difficulties when I take the rx 50,000 units of vit D. I am now trying a liquid drop it seems to be much better although it does cause heartburn and reflux symptoms. The endo is concerned about secondary hyperparathyroidism, he has scheduled a bone density specifically of my left arm, he wants to check for osteoporosis.

Does temperature especially heat intolerance fit into this scenario? I am a well controlled diabetic( 15yrs as a diabetic and just started meds. Diet control worked for me) and I am about 20lbs heavier than I should be, but it’s all in the middle as expected for a diabetic. I think all of this is tied to hormonal systems that my body just does not handle well. I also have PCOS post hysterectomy with no supplemental hormones and do not have migraines any more or severe flares of ovarian cysts. If anything makes sense to you please share. This is genetic and my son has been on 50,000 units vit d for several years and he’s 22.

I recently added a zinc supplement and have noticed a dramatic change in my skin and hair. I don’t get compulsive all over itchyness anymore and my rashes have gone away. If I can get a handle on fatigue I’ll be thrilled. Thank you for the info,

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