Hey Diana,
Thanks for that. I’ve managed to obtain an Immunologists appointment late August, so I’ll give him the info and hope he’s ‘on the ball’, so to speak.
Just had a thought this evening but need to ask first, do we know why the villi don’t work ? It’s been proven that I have a certain level of Mitochondrial Dysfunction and I know Dr Paul Cheney’s work talks about Mitochondrial Dysfunction contributing to our heart problems. Could the villi be suffering from insufficient supply of energy, so that they are unable to keep up with bailing out the CSF at the rate required (it’s on a ‘go-slow’ so to speak) ?
Regards
Barbara
(UK)
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Head & Neck Injury (June 2002); Mild Concussion; Post Concussion Syndrome; Postural Orthostatic Tachycardia Syndrome (POTS); Peripheral Vestibular Dysfunction; Mild Radiculopathy & Small Fibre Neuropathy (right leg & foot resp.); Partially Empty Sella Oct 2002 (worse by Oct 2004); Whiplash Associated Disorder (WAD); 3mm Cerebellar Ectopia (Chiari 0); Cranio-cervical Instability (CCI) with Posterior Gliding (PG) & Cranial Settling (CS); Brain Compression; Retroflexed Odontoid; Stretched/Elongated Brainstem; Ehlers Danlos (EDS) type 111; Osteoarthritis; Arrhythmias (Bigeminy and Trigeminy). . . and now Mitochondrial Dysfunction, Mineral (Mg,Mn,Cu,Zn,Selenium), CoEnzymeQ10 & Vitamin (C,D,B3,B12) Deficiencies!