• Skip to main content
  • Skip to secondary menu
  • Skip to primary sidebar
  • Skip to footer

PrettyIll

Header Right

Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

  • Home
  • The Driscoll Theory®
  • Videos
  • Meet Dr. Diana
  • Forum
  • Store

Reply To: EDS/Mast Cell/Dysautonomia Connection?

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › EDS/MS/Chiari › EDS/Mast Cell/Dysautonomia Connection? › Reply To: EDS/Mast Cell/Dysautonomia Connection?

July 25, 2011 at 5:49 pm #1334
Deb
Participant

In my studies over the last few days I have learned a lot more about histaminosis. After learning about mastocytosis at http://www.youtube.com/watch?v=zaPo0r37wEc&feature=related and from information at the forum, I am starting to understand it better. It does seem that the mast cells would be more likely to get out of control in our tissue if there is a connective tissue disorder. So that makes sense a little.
It also seems that the high histamine levels somehow trigger the tachycardia and other POTS or dysautonomia symptoms. It even seems that the histamines may be released by heat. If so, that would explain why the heat makes me so sick.
I’m trying to cut back on histamine producing foods and high histamine foods adn I’m keeping a food diary. Keeping the diary is really helping me to recognize my symptoms more. I would not have said nausea is a regular occurrence but now that I’m keeping the diary I put nausea down after almost every meal. It lasts for a short period of time after eating. Headaches come and go too – a LOT more than I thought until I had to write it down.
Here’s another very good site to learn more about it: http://www.histrelief.com/4/FAQ.html
Any further insights are very welcome.
Deb

Footer

PrettyIll.com

This website was created to inform, educate and brainstorm with fellow patients and doctors. The content should not be used as a substitute for professional medical advice, diagnosis or treatment. Readers are encouraged to confirm all information with other sources and their physicians. The creator of this site will not be liable for any direct, indirect, consequential, special, exemplary, or other damages arising from the use of this website.

Twitter: @prettyill

What others say

“Dr. Diana will always hold a very special place in my heart for her selfless devotion to helping everyone, not just the Ehlers-Danlos community. I hate to think what my life would be without her insight and guidance.”

-- Chris Gross

Listings by topic

  • Chronic Fatigue
  • Consult
  • Contact
  • Coping
  • Ehlers-Danlos
  • Fibromyalgia
  • Hydrocephalus
  • Mast Cell Disease
  • Multiple Sclerosis
  • Orthopedic Issues
  • Pain Control
  • POTS
  • Speaking Engagements
  • Store
  • Uncategorized
  • Vascular abnormalities

This work may not be reproduced, copied or used in anyway without the express permission of the author -- that's me © Dr. Diana Driscoll 2020