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I too have alot of dizziness and nystigmus at times too… I had my ears checked thoroughly at Vanderbilt Univ. They said it wasnt Meineres but had no answers. Like Dr Diana, I have alot of Neuro symptoms, light and sound sensitivity, dizziness, pressure, etc… I really believe I have a low level of pressure. Just trying to get someone to give me a diamox trial so I can see if it helps! Tracey
Tracey, the more I hear about your symptoms, the more I’m convinced you may have too much intracranial pressure. Are your symptoms worse with valsalva (say, blowing up a balloon?). How about flying in an airplane — any issues there, especially when they change cabin pressure for landing? And then of course is the occipital headache, radiating down our necks to the tops of our shoulders… That has been about the most diagnostic symptom yet, I think. I have yet to hear from someone with that almost constant pain (to the point many of us consider neck fusions), who didn’t respond literally overnight to Diamox! Did you see Beth’s post about her daughter’s experience? I wish I could put my fingers on it right now, but you may want to search her posts, or send her a message. She was able to get Diamox (FINALLY!). And from a PA, no less. Love it. Hang in, my friend. 🙂