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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Reply To: The Chronic Fatigue Element

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › EDS/MS/Chiari › The Chronic Fatigue Element › Reply To: The Chronic Fatigue Element

October 25, 2013 at 7:11 pm #4544
Barbara
Participant

During the second part of last year I was feeling like my body was finally giving up. I’ve felt close to death a few times, since all of this condition started following my head and neck injury in 2002, but these were mainly for acute reasons – something going terribly wrong all of a sudden.

This time was different, it was a slow kind of ‘grind to a halt’ type feeling, I barely had enough energy to do anything and seemed to spend a lot of the day either sleeping, or just looking into space, even my forum posts got few and far between. I knew I had to do something radical to stop being snatched from this mortal plane.

In the years following my fall, I had the luxury of time to experiment with what treatments worked on a ‘try one at a time’ basis. Now I no longer had that luxury, so, even though I started off with good intention, following one treatment protocol at a time, I ended up doing three simultaneously, those were:

The Driscoll Protocol – Diamox, Zantac, Zyrtek (actually cetirizine but I’m assured it’s the same)
Dr Myhill’s Protocol – specific Vitamin & Mineral Supplements, Stone-age Diet, Increased Sleep
The Perrin Technique – Incorporating Lymphatic Drainage, some Supplements and Osteopathic Manipulation

The Driscoll Protocol (once I could convince my doctors to put me on it) was fairly easy to include and follow. I have to admit though, that I didn’t manage to carry out the full Myhill or Perrin protocols but, I did manage to include much of it.

The trouble is, now I’m not sure exactly what has brought about all of the changes – but there have been many! I can link some but not all.

The easiest measure is my performance on my recumbent bike which, considering I could only pedal for 30 seconds (before the ‘lactic acid’ pain set in my calves) when I started this forum post 15 months ago – today I managed 17 minutes, without stopping – I was amazed and stunned and SOOO appreciative of the improvement. I just felt I needed to tell everyone!
Regards
Barbara
(UK)

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