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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Reply To: The Chronic Fatigue Element

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › EDS/MS/Chiari › The Chronic Fatigue Element › Reply To: The Chronic Fatigue Element

July 23, 2012 at 8:47 pm #2661
Dr. Diana
Keymaster

http://www.whitneyzone.com/wz/ubbthreads.php/topics/6444/Re_Diamox_Acetazolamide_for_ac

I am allergic to sulfa (had pretty bad hives from bactrim years ago) or, at least, assume that I am since it was a pretty intense and widespread reaction. Does this mean that I cannot take Diamox? I found the above link that says that it’s sorta diff from sulfa. Any final verdicts? Would it be dangerous to try it? I don’t need anymore trouble, trust me!

Interesting thought! I will need to ask a specialist about this. I can tell you that three different physicians I’ve consulted with have gone ahead –some more cautiously than others — and prescribed it. One did a scratch test first, one had them in the hospital, and the other thought the fear was “over-rated” and just prescribed it! I see a specialist in a couple of weeks and will find out for us her thoughts, OK? Meanwhile, you know if you are to the point of trying it (with caution and with your doctor’s help) or not. I was ready to jump out of a window or just go straight for decapitation, I was soooo miserable. One night with Diamox — poof — head/neck ache gone. Mind you, I was told I was allergic to penicillin, too, but most of us outgrow that allergy. One brave doctor asked me, “So, shall we try it?” 🙂 Obviously, I’m still here, and penicillin is my go-to antibiotic. Those germs in my body had never seen such a thing before! ha. Talk to your doc… And let us know! 🙂 Diana

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