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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Reply To: I see most have POTS in this forum-Does autonomic neuropathy qualify?

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › Skin › I see most have POTS in this forum-Does autonomic neuropathy qualify? › Reply To: I see most have POTS in this forum-Does autonomic neuropathy qualify?

May 5, 2012 at 7:56 pm #2116
Barbara
Participant

I don’t think it matters really what our ‘groups of symptoms’ are classified as, what does matter however, is what’s CAUSING them. Like I was at one point, I suppose many visitors to this website have no diagnosis whatsoever. POTS, does seem to be a common consequence of the likely ‘Cause’, that Dr Driscoll has proposed.

Just for the record, I wondered if POTS was a phase that you either went ‘through’, or went ‘in and out of’ because now (some 8 years down the line since POTS reared it’s ugly head) I notice that, even though I still cannot stand up for long, my heart no longer races to 30 beats more when I stand. My blood pressure doesn’t drop however, instead it continues to rise, so maybe I’m not true POTS anymore, more Neurally Mediated Hypertension (NMH) now? Maybe this raised blood pressure is just another mechanism that the human body recruits to try and deal with the difficult situation it finds itself in.

I’m curious that you say you HAD POTS but don’t have it now, what makes you say you don’t have it now?
Regards
Barbara
(UK)

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