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PrettyIll

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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Reply To: Pectus excavatum UPDATE

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › Orthopedic/Joint › Pectus excavatum UPDATE › Reply To: Pectus excavatum UPDATE

June 8, 2012 at 7:38 pm #2377
ourfullhouse
Participant

Oh, I totally understand about moving and the “start over” fears! Once you find doctors who understand/validate and are willing to learn (about the Driscoll Theory for instance) it would be very hard to start over. And, I also know all about driving 3 hours for specialist. I have been doing the drive to Seattle 4 times in about a year, first to get CCSVI diagnosed, then had CCSVI treated, then went back another time to get stents and coils placed for venous issues (related to CCSVI/bad, incorrect flow), then had to go up there to have bile duct surgery (they don’t do it here in the Portland area, go figure!). We usually spend one night too, and always the appts are EARLY. What is with that? 🙄

Speaking of your doc’s at home, did you get the cytokine testing done and have you gotten results?

Sorry to hear about your husbands job. That is sure stressful for you both, even without sick kids. Lots of decisions to sort through. My husband got laid off 11 years ago (they closed the doors at the semiconductor he worked at -no warning/total shock) and was without a job for 10 months. Hard stuff to live through, but we made it. Whew!

Hang in there!

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“Dr. Diana will always hold a very special place in my heart for her selfless devotion to helping everyone, not just the Ehlers-Danlos community. I hate to think what my life would be without her insight and guidance.”

-- Chris Gross

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