Just curious, has Stryder had an ECHO and/or lung testing? I just interviewed a new pedi. for my kids yesterday and in talking about EDS and my 17 y.o. with the Marfan’s “look”, including Pectus excavatum, and she said for any kid with Pectus excavatum they always do an ECHO and lung testing. Well, news to me, cause our current, going to be OLD pedi’s never cared. Argh.
Are you seeing or going to be seen by a geneticist at OHSU? (I think you are the ones in Oregon, right?)