Shriners called again and said that we need to see a local geneticist regarding his Xrays and other issues, so we are going to make an appointment. I have heard this DR (he is at Doernbechers Children’s hospital) isn’t that great with EDS, but Dr. Roy and his nurse think that since we going to see Dr. F, it will be a great way for them to communicate findings locally, so I’m agreeing to it. I’m hoping that he will also be able to do most of the testing for CCVSI, MRI’s etc but not sure yet.