Thanks for your reply Dr Diana. Yes, I have seen most of the videos on your site. I’m reading up on the alkaline diet, and mostly I’m following it, and I’m using alkaline drops (and buying pH neutral drinking water as I live rurally and our rain water is acidic). And I’m eating bananas every day to replace some potassium. My first lot of bloods have come back great, but this is still very early days as I only started Diamox on Xmas eve.
I did a trial of diamox not because of POTS but because of THE HEADACHE that I’ve been fighting for I don’t remember how long, and it fixed it overnight. I’d have settled for relief from the head pain, but it also gave me back the use of my arms, and I’ve found I’m able to do things I haven’t been able to do for years. Simple things like slice bread, and chop veges, and I’m back driving again.
My dr is impressed with the results but doesn’t have any experience dealing with diamox, so she’s doing research and has referred me to a neurologist. I have no idea yet when that appointment will be – I live in New Zealand and specialists here have a very long wait time.
It’s interesting to me that you no longer need diamox every day – that is great! Please correct me if I’m wrong, but it’s my understanding that Diamox treats the symptoms, not the cause, of hydrocephalus, so what changed? Your meds, or your diet/lifestyle, or ??? Is it because your mast cell issues are better managed?
Thanks for your great work!