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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Reply To: It is a CSF Leak

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › The Latest Research › It is a CSF Leak › Reply To: It is a CSF Leak

June 3, 2016 at 8:25 pm #5959
Yvette
Participant

Finally my doctor got back to me today about giving me diamox. The message said, “diamox is for high inter cranial pressure and that I have low inter cranial pressure.” So I kept calling until I got ahold of someone and said that I have high pressure not low and that I have stopped having fluid coming out my nose last Thursday. So my doctor said that if they are not looking for a leak that I don’t need an MRI and that she has separate tests for inter cranial pressure to see if I need diamox. So on one hand I’m happy to not have contrast in my veins but on the other hand I’m still concerned about Chiari. And I’m also wondering why she needs to do a test (probably spinal tap) before giving me diamox. I have been misdiagnosed and given meds. So I’m not quite sure why such hesitation. I am also thinking if I pass up this MRI she may not order me another one. So I’m still not sure what to do. It’s hard having something wrong in your head not only is it super scary but my cognitive function is impaired for decision making.

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