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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Reply To: It is a CSF Leak

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › The Latest Research › It is a CSF Leak › Reply To: It is a CSF Leak

June 2, 2016 at 2:38 am #5957
Yvette
Participant

My ENT doc said the pellets have dye on them and they are used to locate a leak. It’s a two day hospital stay and he said sometimes done in the O.R. My biggest fear is the MRI with contrast I have mast cell disorder and I take ketotifen. So I’m concerned about an allergic reaction to the contrast. I called my allergist she said that allergy to contrast is rare and to stay on top of my meds before going in but everything about me is “rare.” I have decided to not go forward with the pellets and I believe the leak is already healed I have no more fluid and the pressure has eased off. My MRI is this Friday I really am torn about doing it. I don’t feel good about it because they are looking for a leak that isn’t there so I feel I’m just going to risk a reaction and I find MRI’s to be awful. The only positive in having the MRI I can think of is, I have suspected Chiari for a long time so this would answer that. I would like some insight and some advice I’m not sure what to do and I don’t want to make a bad situation worse.

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