• Skip to main content
  • Skip to secondary menu
  • Skip to primary sidebar
  • Skip to footer

PrettyIll

Header Right

Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

  • Home
  • The Driscoll Theory®
  • Videos
  • Meet Dr. Diana
  • Forum
  • Store

Reply To: EDS/POTS/Previous history of burst abdominal aorta and other haemorrhages

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › EDS/MS/Chiari › EDS/POTS/Previous history of burst abdominal aorta and other haemorrhages › Reply To: EDS/POTS/Previous history of burst abdominal aorta and other haemorrhages

April 22, 2015 at 1:23 am #5448
NellieMae
Participant

Thanks so much for replying Dr Diana
I’m hoping to get hold of the actual MRI soon (but I suspect it will take a while, given how long it took to just get hold of the notes etc). I did see a geneticist a few years ago to rule out vascular EDS. Apparently mine didn’t match with the 6 most common forms of arterial rupture – the COL3A1 seemed to be clear, although they kept some blood on file in case it was something that hadn’t been mapped yet. I’m not exactly how all that works. So I’ve been left with “we think you’re a bit of an unusual bird, but we don’t know exactly what it is, but it may be/probably is in the EDS spectrum”… I’m not so concerned about me, but more about establishing a diagnosis for 1 of my 3 kids who seems to have more features than I would have done at that age.

In the meantime, I will ask my General Practitioner (I’m in Australia) for a referral for a second opinion!! Thanks so much for your input and wisdom 🙂 I really appreciate it!

Footer

PrettyIll.com

This website was created to inform, educate and brainstorm with fellow patients and doctors. The content should not be used as a substitute for professional medical advice, diagnosis or treatment. Readers are encouraged to confirm all information with other sources and their physicians. The creator of this site will not be liable for any direct, indirect, consequential, special, exemplary, or other damages arising from the use of this website.

Twitter: @prettyill

What others say

“Dr. Diana will always hold a very special place in my heart for her selfless devotion to helping everyone, not just the Ehlers-Danlos community. I hate to think what my life would be without her insight and guidance.”

-- Chris Gross

Listings by topic

  • Chronic Fatigue
  • Consult
  • Contact
  • Coping
  • Ehlers-Danlos
  • Fibromyalgia
  • Hydrocephalus
  • Mast Cell Disease
  • Multiple Sclerosis
  • Orthopedic Issues
  • Pain Control
  • POTS
  • Speaking Engagements
  • Store
  • Uncategorized
  • Vascular abnormalities

This work may not be reproduced, copied or used in anyway without the express permission of the author -- that's me © Dr. Diana Driscoll 2020