Yes, being the logical, analytical “old dog” that I am, I am always interested in delving deeper into what’s going on when the docs come up empty-handed. That’s how I discovered my platelet hyperaggregability problem after a 20-year undiagnosed journey through peripheral vestibular dysfunction Land.
After the UCSF neurotologist told me back in 1998 that chronic, disabling vestibular dysfunction was my cross to bear in life, I proved him wrong by reading his 1500-page textbook in order to know where not to look when I delved into a comprehensive Medline search.
Interestingly, it was the keyword searches “Ehlers Danlos platelet” and then “platelet vertigo” that led the way to learning that my platelets were clumping up and impeding the microcirculation to my inner ear. Plavix and aspirin cleared up all the vestibular symptoms and have kept them away for the most part.
So now with the weird head symptoms much worse, it’s time to return to research Land. I see that a lot has happened there since 1998!
By the way, I mentioned increased intracranial pressure to the Mc-neuro doc, and she instantly dismissed it saying she would have seen evidence of it in my eyes. Rest assured that I am looking for a new neurologist.
Can’t wait to see the results of my upcoming MRI.