After fighting with this lot for 6 years, in 2008 I flew across the Atlantic to The Chiari Institute in New York, as I believed I had found a man who really understood the problems I was suffering. He was a great educator and I watched all of his videos before going across. His name was Dr Bolognese, I have deep respect for this man, despite any bad press he has received in recent years. He has helped thousands, there are bound to be the odd few that haven’t enjoyed the same amount of success but overall he has done much good in this world, where others turned their backs.
He diagnosed me with ‘Brain Compression’. His colleague Dr Milhorat carried out further testing (invasive cervical traction – NOT to be recommended!) and diagnosed ‘Post-Traumatic Cranio-Cervical Instability’ but I didn’t qualify for the Chiari diagnosis, as my cerebellar tonsils weren’t herniated by 5mm, so I was told they were ‘low-lying’. Dr Nishikawa, the morphometrics man, was very helpful too with his measurements and when I put my hypothesis to him, that I thought my brainstem was being pincered between my odontoid and opisthion, he looked at it and he thought it also.
Here in the UK I consulted with Dr Raymond Perrin, after reading his book (available on Amazon) and after listening to Dr Diana (and reading her book!) about the involvement of CSF drainage. I’d wake up with hands resembling boxing gloves, they were swollen and I knew I needed some kind of lymphatic drainage (and help with the chronic fatigue I had developed). So I started The Perrin Technique, initially at his clinic in Manchester but also carrying out drainage massage and exercises at home. It has helped both with swelling and energy levels.
You can watch 6 videos about Dr Perrin’s approach at:-
Barbara
(UK)