Have you ever had an accident that started this off, or are you hypermobile ? Have you had an MRI of your head, or just neck. I would be interested in seeing your head MRI, if you have one, to see the state of your pituitary and to look for any excess cerebro-spinal fluid (CSF).
I am not medically trained but I have been studying MRI’s for 6 or 7 years now. I can see several potential problems on this MRI but it is late and it will take me some time to examine and explain, so I will try and look at it again tomorrow.