It might have been me …I have had a good run with LDN and your description sounds like me. the Berkson protocol is high levels of alpha lopoic acid (IV) and from what I have read, it is given to patients with incurable cancers or people who did not want to take the chemo. Alpha lopoic is just plain good for the body …especially the liver…but Im not sure what I found expect it to do for Ehlers-Danlos .
What state would you be flying from? There are prescribing MDs for LDN in other places.