Hi Tareq, I would absolutely encourage your doctors to help you with a trial of Diamox and a brain MRI. To date, every person we’ve seen with even a small Chiari at POTS Care, has experienced some dramatic improvements with Diamox (even elimination of the Chiari in a couple of cases). Quite a few patients were able to avoid neck fusions, too. The next step is to focus on what has made the intracranial pressure increase. If you are like many of us, there are often underlying causes of the increase in pressure that tie in with chronic fatigue. It can be tough to figure out, but absolutely worth it! Meanwhile, Diamox can significantly improve your quality of life, if you are affected by high pressure. Hang in, my friend.
Thank you so much for the reply, I’m going to try get an MRI scan as soon as possible. I may have a private doctor who may be willing to prescribe the diamox hopefully!(I live in the Uk and doctors here are quite behind with connection between EDS, CFS etc) Could I ask is it still safe to take diamox even if the MRI doesn’t show chiari malformation? And at what dose do you normally recommend to your patients to start with? Thanks again,
Tareq