Of course! I will wait for ‘official’ dosing until I see my doctor in June.
Does the generic work ok too? Or do we need to stick with the name brands (this stuff is pricey! but I’ll pay it to be better!)?
Welcome to Pioneer-land! Although I used to take the same dose as Palomino, I’ve been able to go down a bit on Zyrtec (perhaps because I’m on Cromolyn? I’m not sure). But there are also patients who eat this stuff like candy, use other antihistamines, use epi-pens on a regular basis, and are barely getting by. I know two patients who have “true mastocytosis”, as opposed to most of us, who have Mast Cell Activation Disorder, mediator (-). Bottom line? Everyone is different. Everyone’s lab work is different. Everyone’s dosing and additional medications will likely need to be tailored to their body, and their body’s response.
Many years ago, I learned that Zyrtec helped me (it was still by prescription back then!). If I ran out, I’d call my neuro in a PANIC!! Nothing else worked, and I HAD TO HAVE IT. It was what is considered now to be a “double dose”.
By all means, talk to your doctor or mast cell specialist. And be sure to listen to your body. If yours is as noisy as mine is (ha), it will let you know how much you need. And don’t be surprised if your dosing goes up and down a bit, too, OK? Variables such as the weather, your diet, your sleep, etc. will also come into play. Keep us posted! 🙂 Diana