“To my knowledge, I do not have EDS. No stretchy skin, no hypermobile joints. I don’t fit the widely touted classic look of someone with EDS of tall, blonde, and slender (polar opposite actually lol)”
“Laying down it will be 128/73, sitting is a little higher but within a minute of standing 180/120 with the high heartrate. The longer I stand the higher it goes”
“Numbness and tingling in hands, feet, and calves occasionally. Plus, just general muscle weakness in arms and legs.”
“They tell me I’m just fat and out of shape, which is true but the POTS thing is what slowed me down.”
“Who wouldn’t panic when standing up causes all this chaos and who wouldn’t be depressed being basically bed bound? But I know which came first and it wasn’t anxiety or depression. They have managed to convince my family that I’m a headcase however”
No probs Lee. I have been diagnosed with EDS but it’s not blatant. I have taken the above extracts from your original post, as they could even be talking about me, as I have experienced the same. I’m sure there are many on here who could also say that. You are not alone and we seem to be growing in numbers!