NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › POTS › What is going on? › Reply To: What is going on?
Although none of us can tell what exactly is causing this (over the internet), I remember going through episodes similar to what you describe that were likely high intracranial pressure (corking at the top of my spine). Mine gradually dissipated after being on Diamox. Looking back, we can see how I had pressure on my brain stem contributing to many of my POTS symptoms. Those episodes were horrifying but early on, I was fairly functional between episodes (this changed later — the episodes were less intense, but my functionality between episodes also declined). After the episodes, I was a mess — bad trembling, weakness, etc for a couple of days. I’m so sorry you are going through those but I hope others will pop on about their episodes… 🙁