Dear Floatawhile,
First let me say how sorry I am for all you’ve been thru in your young life. I send my compassion and prayers to you. Have you watched some of Dr. Dinana’s videos? Also, she runs a clinic in Texas called Potscare wher she is now treating patients full time. If you go to that website, Potscare.com she has available to anyone a brochure that you can print out and read on some of the main issues she would tackle first when starting out treatment for dysautonomia. Something you might consider is trying diamox to see if you are dealing with intracranial pressure. Hopefully a doctor might help you out with a trial of this drug. It may help some of your symptoms of chiari and or CCI. It seems you are dealing with so much – but maybe that would be a start. She also offers a book “The Driscoll Theory” that may be helpful. You certainly seem like an incredibly strong young woman. Hopefully Dr. Diana will chime in soon to give you better advice. Take care Floatawhile.
Terriann