I had check the eds symptoms on wiki some time ago and didn’t relate that much. But maybe I’m missing something…
I do have a paternal aunt who is as severe as me. My dad, siblings and a cousin seem to all have the same problem but very slightly. I’m trying to download an updated version of adobe reader because the symptom list wouldn’t open.
I never went to a Cardiologist. My heart rate is slow (60) and I don’t suffer from tachycardia. I sometimes have heart flutters which make me cough but I attribute that to low potassium. Usually it’s resolved after I eat a banana.
As for my symptoms I currently have:
low grade fever during pms
long, irregular cycle
multiple food and medication intolerances
very painful constipation (lower left pain)
low exercise tolerance
ankles swelling if sitting or standing
pain in feet
fingers hurt when I type
random pain here and there, sometimes a shoulder, sometimes a leg
Nancy are you able to watch Utube? There are some great videos both on this forum and online about EDS. I was also thinking maybe you could see a dermatologist for a skin biopsy. They can be helpful for diagnosing a connective tissue disease. However, a negative skin biopsy does not mean you don’t have a connective tissue disease. Is there an endocrinologist on Malta you could see too? Do you have joint hypeermobility, subluxations, and pain? Google the Beighton score for EDS. Most of us never realize that were are flexible because we have always been flexible and our family is too. Remember it declines as we age. Your symptoms are common among EDSers. You may want to look into other connective tissue diseases too.