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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Reply To: Newbie feeling very lost

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › EDS/MS/Chiari › Newbie feeling very lost › Reply To: Newbie feeling very lost

September 5, 2013 at 10:29 pm #4291
Lab-Scientist-Lady
Participant

Hi Nancy, you don’t have to be double jointed to hyperextend joints. I hyperextend my knees and elbows past negative 10 degrees. I first learned I could do this form my physical therapist and my doctors. i never realize I was doing it. All my joints pop too and it’s actually subluxing. Sounds like you’re describing you joints doing that. Even sounded like you had a complete dislocation that you managed yourself. For me it started in my ankles, TMJ/jaw, and my patella on my left knee. Now it’s almost every joint my body from my thumbs to my shoulders to my big toe. I would try to find a dermatologist that knows something about connected tissue diseases and maybe she can order a skin biopsy for you, and then from there you can go to an endocrinologist. If you could find a genetictist that would be even better. Do you have the stretchy skin? Check multiple places on your body. It only needs to be 1.5 cm or greater. Doctors prefer the volar surface of the wrist. Do you have abnormal scaring? Like thin, white, transparent, stretch marks? I hope you can also check out the videos on here that dr. Diana made. They are full of wonderful info.

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“Dr. Diana will always hold a very special place in my heart for her selfless devotion to helping everyone, not just the Ehlers-Danlos community. I hate to think what my life would be without her insight and guidance.”

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