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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Reply To: Newbie feeling very lost

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › EDS/MS/Chiari › Newbie feeling very lost › Reply To: Newbie feeling very lost

September 6, 2013 at 10:27 am #4294
Lab-Scientist-Lady
Participant

Hi

I can’t be sure but I don’t think I hyperextend my joints. I do think my skin is stretchy. I don’t have abnormal scarring. Would a genetist give me a more definite answer?

I’m starting to believe my BF has EDS :/ He was operated at 15 for scoliosis. He has hyperflexibility. He has had more than one dislocation. His joints pop often and loudly especially his jaw! He suffers from dry eyes and his skin is stretchy. He also suffers from low stamina/fatigue and low stress tolerance. He gets very anxious and panicky and very tired if under stress. He also manifests the classical ADHD predominantly inattentive type symptoms. He is not really ill like me but gets very tired easily. He often has insomnia and occasionally he has unjustified diarrhea.


A geneticist is the best doctor to see for the diagnosis of EDS and other connective tissue diseases. It may take a awhile to get into one, but when you do give them a complete medical history. Include every thing no matter how small or unrelated they may seem. Do this with your family members as well.
It does sound like your friend has it too. Sometimes men suffer less from EDS than women. This is true in my family. The women are greater affected by EDS than the men. I hope this will be true for my son, even though he is showing the same symptoms I was at his age.

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