I sure hope your son will have an easier life than the one we are having. At least he has you to guide and support him. Which is so much more than most of us ever had.
We will do our best to go to a genetist. Dr. Diana wrote me back this morning (it’s 23.43 now)and gave me some valid input 🙂 Thanks for suggesting that I fill in the questionnaire and contact her.
Last Tuesday I relapsed with a bang and it’s my fourth day in bed. Today was tough. Got so bored and claustrophobic! And lonely. At times I felt panicky.
Thanks for your wonderful support. Hope you are having a good, symptom-free day