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PrettyIll

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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Reply To: Newbie feeling very lost

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › EDS/MS/Chiari › Newbie feeling very lost › Reply To: Newbie feeling very lost

September 5, 2013 at 3:54 pm #4289
Nancy
Participant

I managed to open the list. I filled it in and sent it 🙂

Your concern and commitment to help me is moving. Haven’t encountered much of this before.

Yes there is an endocrinologist in Malta and I guess I can have a biopsy.

If joint hypermobility is being double jointed, I certainly am not.

In my teens I used to have a lot of joint pain and I remember my elbows and knees were particularly troublesome. My elbows used to click out of place when I used to lift the pet cat I had then. I used to need to crack them back into place. Later on I had pain in my knees and doc said it was ligaments. They especially hurt when I used to climb stairs. I used to wear elastic supports. Everyone said it was growing pains.

When I reached my 20’s that was all past and I started the IBS/constipation phase. At 25 I got diffuse muscle pain. And at 29 I started with dysautonomia. Muscle pain is gone now except for a day here and there usually with menstruation. IBS is out of control and along with dysautonomia, it is ruining my existence!

I do get frozen shoulder every now and then and once, some 4 years ago, I got up normally from bed and my shoulder simply slipped out of its socket. There was no jolt or anything. I didn’t stumble. It was all very normal. I immediately lifted it and ‘hinged’ it back in its place. It was all very automatic. Then I had the frozen shoulder from hell for a couple of weeks. Nothing of the sort has ever happened before or since. Even whenever I fell I never dislocated anywhere.

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“Dr. Diana will always hold a very special place in my heart for her selfless devotion to helping everyone, not just the Ehlers-Danlos community. I hate to think what my life would be without her insight and guidance.”

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