• Skip to main content
  • Skip to secondary menu
  • Skip to primary sidebar
  • Skip to footer

PrettyIll

Header Right

Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

  • Home
  • The Driscoll Theory®
  • Videos
  • Meet Dr. Diana
  • Forum
  • Store

Reply To: Diamox Side Effects?? I am so loopy!

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › POTS › Diamox Side Effects?? I am so loopy! › Reply To: Diamox Side Effects?? I am so loopy!

April 9, 2012 at 12:37 am #1968
MattiesMom
Participant

Ourfulhouse,

Thank you once again! I did read your comments yesterday, but my migraine was so severe, looking at the computer screen hurt, so I took the day off of the computer. I decided to take 1/2 doses of Diamox with some Sodium Bicarb pills my hubby got from the pharmacist -650mg tabs similar to the link. (The new link works when copied and pasted into browser, Thx). I could actually feel the Diamox wearing off every couple hours, as the head neck pain is different than the other migraine pain. I am charting now in a journal. I think you may have been right about the allergic reaction triggering the migraine. I spent the day in my room quiet, and dark. Today I was relieved to wake up without the awful migraine. Today was one of the most functional days I have had in quite a while. 🙂 I feel that I am reading my body better and figuring out the Diamox dosage better and think the sodium bicarb tabs may be helping more than the nasty baking soda water. 🙂

No, I do not have an epi-pen, but after what happened with the toothpaste (and a handful of similar experiences), I think you are right.

My cardiologist wants to add low dose (compounded to be lower dose) beta blockers. Have you tried beta blockers, or have you heard anything good/ bad about treating EDS POTS patients with beta blockers?

I am curious about the anti-depressants as well, as he also mentioned SSRIs as a possibility. I have tried SSRIs in the past (when doctors thought I simply had chronic fatigue/ fibromyalgia, and migraines…before I developed POTS and before we knew about Ehlers-Danlos)… and I had bad reactions and a hard time trying to adjust to each one we tried before giving up. (Though I think I had the best run with Welllbutrin for a little while there.)

Having somewhere to go to speak with people who understand means a lot to me too. I appreciate the support.

Footer

PrettyIll.com

This website was created to inform, educate and brainstorm with fellow patients and doctors. The content should not be used as a substitute for professional medical advice, diagnosis or treatment. Readers are encouraged to confirm all information with other sources and their physicians. The creator of this site will not be liable for any direct, indirect, consequential, special, exemplary, or other damages arising from the use of this website.

Twitter: @prettyill

What others say

“Dr. Diana will always hold a very special place in my heart for her selfless devotion to helping everyone, not just the Ehlers-Danlos community. I hate to think what my life would be without her insight and guidance.”

-- Chris Gross

Listings by topic

  • Chronic Fatigue
  • Consult
  • Contact
  • Coping
  • Ehlers-Danlos
  • Fibromyalgia
  • Hydrocephalus
  • Mast Cell Disease
  • Multiple Sclerosis
  • Orthopedic Issues
  • Pain Control
  • POTS
  • Speaking Engagements
  • Store
  • Uncategorized
  • Vascular abnormalities

This work may not be reproduced, copied or used in anyway without the express permission of the author -- that's me © Dr. Diana Driscoll 2020