Are these problems hard to notice on MRI’s? I ask because Stryder has several problems that we have known are going on in his brain and some have been fixed with seizure meds. The final say on the disc says no problem, but when we we at the Mayo, they pulled up a still that showed white matter and it was clear in the pic. Also cyst like things on the base of his skull. I have not doen very much research on the MRIs and EDS connection, just wondering if I should. I am so lost on how to help him.
Hi, this is “new science” and as such physicians (including, and I may say “especially”) radiologists have never looked for this phenomenon before. I’ve had many PATIENTS contact me with a few shots from their MRV’s that seemed to match what they saw in The Driscoll Theory. Yup! THEY saw it! When I lectured at ISNVD, the doctors knew exactly what I meant and knew then what to look for. As I mentioned in videos and talks (and in Part 2), no one ever thought to look at what enlarged VEINS could do to our vagus nerve (before now!). So, the doctor needs to understand what they’re looking for (the images in Part 2 will help, oh, the paperback is available now, too.) ALWAYS get copies of your images (the RAW data). I will set up some way for us to gather the pertinent images along with our symptoms for publication, OK? I do believe that all EDS/POTS patients need MRI’s AND MRV’s. I think it is essential to do so to get the entire picture. Sound good?
I am on my way to purchase the paperback now 🙂 been waiting LOL.
I have CD’s of my images and the neurologist will send copies to anyone I need as well. I looked at his MRI and I’m just not good at them and can’t see anything- oh I do remember there was one thing on there that looked abnormal, but they said that he may have moved and dismissed it. They were looking for something specific like tumors though if I remember right. We have another appointment with Neurology at Doernbechers Childrens Hospital coming up, so we may get a newer MRI done at that time. They are just waiting to find the right DR.there because he is such an abnormal case.