• Skip to main content
  • Skip to secondary menu
  • Skip to primary sidebar
  • Skip to footer

PrettyIll

Header Right

Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

  • Home
  • The Driscoll Theory®
  • Videos
  • Meet Dr. Diana
  • Forum
  • Store

Reply To: Diamox Side Effects?? I am so loopy!

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › POTS › Diamox Side Effects?? I am so loopy! › Reply To: Diamox Side Effects?? I am so loopy!

April 6, 2012 at 12:25 pm #1947
MattiesMom
Participant

Ourfullhouse, Thank you for the reply. I have increased slowly as the side effects have tamed down significantly, but it still makes me VERY tired. Night before last, I took full 125mg pill before bed, was SO tired upon waking, but was amazed by the lack of headache and nausea when I first woke up. I had to be functional enough to pick up my daughter from school, help her with homework, do things around the house, so I took 62.5mg 3 times during the day, but feel breakthrough headaches and POTS symptoms at times. Last night I got brave and took 250mg before bed. I woke (after forcing myself out of bed) to no headache and had mental clarity, no nausea. I am still extremely light sensitive, and having breakthrough head and neck aches. I know I need to figure out the proper dose still. I have been drinking LOTS of baking soda in water. I do not have anyone knowledgable to order blood panels at this time. I do have pH strips and have been testing my saliva to be sure I do not get too acidic.

My “POTS knowledgable” cardiologist has never tried Diamox with any of his POTS patients, but was willing to allow me to try it. He gave me a 3 month RX of 125mg twice daily, and told me I could play around with the dosage. He wants me to report back to him in 2 weeks.

I tend to react to many prescription medications, in unexpected ways, so I guess this may just me adjusting to the meds? I do still have very numb hands on it (at times), and increased light sensitivity, but I had light sensitivity before starting on it, just seems even worse now. I had vision issues on/off before starting it, but strain even more now to try to read these threads on computer screen. My giggly delirious thing seems to have passed. I still have increased appetite which is AWESOME!

I think you are right, I need to take it at a more structured/ scheduled times. Today, I will start a diary of symptoms and times, and try to be consistent when I start feeling it is helping the most. Also, I think I will ask the pharmacist for Sodium Bicarb pills when I am there next time.

Thanks again for feedback!

Footer

PrettyIll.com

This website was created to inform, educate and brainstorm with fellow patients and doctors. The content should not be used as a substitute for professional medical advice, diagnosis or treatment. Readers are encouraged to confirm all information with other sources and their physicians. The creator of this site will not be liable for any direct, indirect, consequential, special, exemplary, or other damages arising from the use of this website.

Twitter: @prettyill

What others say

“Dr. Diana will always hold a very special place in my heart for her selfless devotion to helping everyone, not just the Ehlers-Danlos community. I hate to think what my life would be without her insight and guidance.”

-- Chris Gross

Listings by topic

  • Chronic Fatigue
  • Consult
  • Contact
  • Coping
  • Ehlers-Danlos
  • Fibromyalgia
  • Hydrocephalus
  • Mast Cell Disease
  • Multiple Sclerosis
  • Orthopedic Issues
  • Pain Control
  • POTS
  • Speaking Engagements
  • Store
  • Uncategorized
  • Vascular abnormalities

This work may not be reproduced, copied or used in anyway without the express permission of the author -- that's me © Dr. Diana Driscoll 2020