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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Reply To: is EDS type 3 linked to Pseudotumor Cerebri

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › EDS/MS/Chiari › is EDS type 3 linked to Pseudotumor Cerebri › Reply To: is EDS type 3 linked to Pseudotumor Cerebri

June 25, 2013 at 9:02 am #3819
Jrl_3327
Participant

Hi Dr Diana, yes I have very dry dry skin. I had itchy legs and I got a spot the size of a nickle that is a darkened area it started on the top of my right foot about a year ago it would itch after a few months of itching it the size went from a circle and the a straight line went up my the front of my leg in total length its a straight line with a circle at the bottom and its probably about 3in or so. My Dr has no idea what it is. Once I started the zyrtec it hasnt itched once. Now my scalp has always been dry and flakey big flakes and itchy at times. I would itch it til my scalp was sore the zyrtec also stop my scalp from itching but the flakes are still there. My skin its extremely dry always has been I put expensive lotions on at least 2-3× a day but 30min later u can’t tell I can take my finger and write on myself. I used to get white dry circle patches on my upper arms haven’t had them since last summer although my son and youngest daughter stil get the dry white patchy circles on their face. Idk if this makes a difference or not somethings are harder to see on my skin, my mother is Caucasian and my father is African American. My children’s father is Caucasian so my oldest daughter and son have pale skin tone and me and my youngest daughter have medium skin tone. My scars used be white up until about a year ago now they are dark brown. I was told years ago I have dermatitis but haven’t been to a dermatologist in over 8yrs. My youngest sister had a bad out break of psoriasis at age 15 she was covered from head to toe. She is now 24 and has it not as severe but her scalp and elbows are still covered. I get outbreaks of flakey patches on my ears at times. My shoulders get these things that look like pimples but there not regular pimples its almost like they’re hard but have tiny blister over them they come and go. If I’m wearing even cotton pants that are lose they still leave lines or grooves in my skin that take about 10-20min to go away. What I’m confused on what is the difference between mcas and mcad? I don’t think I have full out mast cell but something associated with it. Who knows I could be way off track. I’m just asking for opinions so I can go in the right direction. Can interstital cystitis have any involment with the GI System? I’ve been told I have IBS by 1 dr and IBD from another. Non of the meds they have tried in 5yr has help with my Bowles or digestive track. I worked as a C.N.A for over 13 yrs I took care of many patients with colostomy bags and that’s one thing I want to avoid. As the days go on & I countlessly go up to 15+ days with no emptying and some days I go 3mo with nonstop diarrhea but the not goin at all is happening more and more how healthy can that be for a persons body! Does anyone know a name of a medication that might help my stomach or intestinal problems that I could suggest to my pcp just to see if its any relief? One more thing my son has a geographical tongue never had any issues until about 3wk ago he gets these circle shape inflammed areas all over his tongue that became painful I took pics to show his dr bc they come for a day or 2 then disappear then return again his pcp said he has no idea never seen anything like it so I asked him to switch he claritin to zyrtec just to see if it does something. He has been on it about 4-5days now and hasn’t had a flair up on his tongue at least not yet..
Thank you!
Jamie:)

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