Hi Dr. Diana,
Yes I have been diagnosed with interstitial cystitis and have been in the ER a couple of times in absolute pain and they tell me all the test are normal and I don’t have any infection. It’s just IC. At this moment I actually do have a real UTI and have no bladder pain at all! My only symptom was spotting. Very strange. I have Ehlers Danlos, POTS, Scoliosis with Harrington Rod, IC and the list goes on. 🙂
It sounds like you may want to hang on to that infection! 😉 Can I ask if you get any strange rashes, especially ones that itch? Or do you have any “goose bump/chicken skin (usually found on the arms)?