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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Reply To: is EDS type 3 linked to Pseudotumor Cerebri

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › EDS/MS/Chiari › is EDS type 3 linked to Pseudotumor Cerebri › Reply To: is EDS type 3 linked to Pseudotumor Cerebri

June 25, 2013 at 12:17 pm #3821
Jrl_3327
Participant

Sorry I forgot to mention earlier that when I say I have more energy in the morning that is more so that I’m not as fatigued I do have symptoms from the time I wake up til the time I go to sleep. And before the diamox my eyes felt like they were giong to pop still nausea and bowel issues but my head didn’t start to feel heavy til about 1pm or so and I’m more stiff in the afternoon aposed to 1st thing in the morning. Early morning my eyes would feel as if I was look through gas like blurred. But I don’t get those symptoms since diamox and the 2 Z’s. The shoulder and neck pain comes and goes still its not no where close to as bad as it was previously. My mri I had a few weeks ago says there’s mucosal thickening seen involving the right maxillary sinus.. not sure what that means I’m not sick I don’t get sinus infection maybe 1x a yr. All of my children do but its not common for me. I do get pressure under my eyes when I was getting bad migranes and or eye pain but no infection that I was ever aware of. My neurologist says its normal but I’m not quite sure about that. Would it be an ENT that I would see? Today for the 1st time both sides of my face had felt tingly and numb just under both eyes. It went away after 30min or so.

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