Shonda, I understand your point but my detailed explanation … The one that disappeared…. put his comment in a better context. He actually is thinking more in terms of nerve issues and I think neurogenic (sry, sr. moment.. i mispelled last time) testing will cover IC, nerve issues, and anything else that course cause urgency and cramping. He’s the first doc to go through EDS issues Francomano style. So he’s the best but until something else comes along. And he will listen and discuss to uncover what the issue is. Right now he asked me to make sure a fairly recent lumbar MRI shows no tethered cord (request for a re-review from the ortho). So he is doing it right. The statement was just out of context.
It always nice to know someone will come to my defense. I don’t know what I would do without the moral support of my fellow cyber EDrs!
I am glad. I am so tired of doctors when they give pissy answers. I worked in the medical field so I have gotten better at finding good doctors, but I still run into plenty of bad ones. I have a low tolerance for bad doctors. Especially ones that take your money and then tell you that they can’t help, because the don’t deal with that issue. My dad is very sick and has been bounced around this year. He is having to go back and forth from one gastro doc to another, because one does one thing and the other another. It use to be something a PCP would take care of, and my dad is still waiting to get things taken care of. I swear I think someone could bleed to death before they get help. Anyways, I didn’t want you to think you didn’t have IC, because of one doctors opinion.