Okay, my post disappeared before my very eyes. Did I overrun a limit? I was almost done. I do think I have emerging IC. Doc want to run urogenic testing . I’ve got a history that I think is relevant which includes recent bi-apical lung scarring/fibrosis . I’ve already been treated for MCAS. I’ve got good records if you need it. Doc doesn’t think ‘I’ve got it cuz it needs to be more painful. is that true?
Yikes, Hon, the limit is HUGE! I’ll let the webmaster know, in case there is some sort of glitch over here, OK? She is working on some updating, and you know what that does!! Jeez, I have a love/hate relationship with technology. Please bear with me, as she is on vacation for 2 weeks. Crazy, huh? I’m working on something for our IC right now! Lots of us have lung scarring/fibrosis. I don’t believe either are related directly to mast cell disorders, personally. Histamine IS found in IC, so it’s a good idea to keep histamine down, though. Painful? If it is big and bad it can cause chest pain, but many times, it is found on an x-ray taken for other reasons, so I disagree, unless yours is ‘big and bad’. Do you have a pic/X-ray? You KNOW I’d love to see it! Thanks so much. I’m hoping my post won’t disappear before my very eyes now! 😉