Okay, my post disappeared before my very eyes. Did I overrun a limit? I was almost done. I do think I have emerging IC. Doc want to run urogenic testing . I’ve got a history that I think is relevant which includes recent bi-apical lung scarring/fibrosis . I’ve already been treated for MCAS. I’ve got good records if you need it. Doc doesn’t think ‘I’ve got it cuz it needs to be more painful. is that true?
EDS99
Hi EDS99,
Just my opinion, but everyone’s Interpretation of pain is different. Therefore, when the doctor tells you that he thinks it needs to be more painful for you to have IC, I think that is a ridiculous answer. You could have nerve damage or something that would make it see less painful to you. When I have a UTI it is a terrible burning and pain, but for others they don’t know they have one until the infection reaches the kidneys and the are sick. I hope you can find a better doctor.
Shonda