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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Reply To: MRI pictures of my head, Chiari and hydrocephalus?

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › EDS/MS/Chiari › MRI pictures of my head, Chiari and hydrocephalus? › Reply To: MRI pictures of my head, Chiari and hydrocephalus?

July 31, 2013 at 9:08 pm #3997
Barbara
Participant

Nope, I didn’t always get the paralises after sleep, sometimes but not always.
The two last ones happened during the day, one started after the swollen throat sensation, the other one with weakness in arms and legs.
My throat had a swollen feeling and my breath soundes weird but they didn’t see it swelling so it must be anything else.
Thanks!
Samuel

Curious you got the paralysis after the ‘throat swelling’ sensation because I think the throat swelling is prompted by having head down in flexion whilst looking left and right. I think this allows the odontoid to put presure on the brainstem, albeit subtly, or briefly. As all neural messages pass to and from the body via the brainstem, then I can understand how this can bring on paralysis. In fact I’m certain this is what was causing my night-time paralysis, as ‘normal service’ was resumed within a short while of getting my chin off my chest and my head back into the neutral position.

All the more reason to keep your head in that neutral position and keep moving your legs, so that your brain still knows you have legs and will try and repair damaged connections.
All the Best
Barbara
(UK)

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