Hi Barara,
thanks for your reply!
Somehow it’s nice to hear I’m not alone suffering from this but on the other hand it’s really sad.
Yes, I wear a Philadelphia collar but not all of the time because it will make my muscles weaker.
How did they test you for retroflexed odontoid? And isn’t there anything you can do like surgery?
Here in Germany doctors gave up on me or more precisely lack knowledge and aren’t interested in finding a solution for me.
I’ve heard health care is better in UK than Germany and you even have a clinic for hypermobility?
For Vitamin D I already planned to get B12 checked and I can also ask my doc to check my D levels.
Samuel