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PrettyIll

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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Reply To: MRI pictures of my head, Chiari and hydrocephalus?

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › EDS/MS/Chiari › MRI pictures of my head, Chiari and hydrocephalus? › Reply To: MRI pictures of my head, Chiari and hydrocephalus?

July 28, 2013 at 9:04 am #3965
samuel94
Participant

Hi Barara,
thanks for your reply!
Somehow it’s nice to hear I’m not alone suffering from this but on the other hand it’s really sad.
Yes, I wear a Philadelphia collar but not all of the time because it will make my muscles weaker.

How did they test you for retroflexed odontoid? And isn’t there anything you can do like surgery?
Here in Germany doctors gave up on me or more precisely lack knowledge and aren’t interested in finding a solution for me.
I’ve heard health care is better in UK than Germany and you even have a clinic for hypermobility?

For Vitamin D I already planned to get B12 checked and I can also ask my doc to check my D levels.

Samuel

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